Increase patient access to and understanding of data controls. Provide continuous updates to enhance transparency about lack of control over data and educate patients on security practices.
Provide modular data-sharing options and semi-automated transparency updates. Enhance monitoring for lack of control over data and increase patient awareness through accessible communication platforms.
Adopt a zero-trust framework with explicit opt-in procedures. Implement high-priority response mechanisms for lack of control over data with external security partnerships.
General Recommendations
Emphasize the importance of control over their health data. Include explanations of data control, highlighting its significance for privacy and security. Inform patients about their legal rights and protections, encouraging them to prioritize transparency and informed consent in data sharing practices, and provided with tools to manage their health information effectively. Educate patients about how to advocate for their data control rights and offer support services or connections to advocacy groups focused on privacy in healthcare in order to empower patients with knowledge and resources to assert control over their health data, enabling them to make informed decisions and protect their privacy effectively.