Explain how data is aggregated to reduce individual risks. Provide continuous updates to enhance transparency about concerns about secondary use of personal data and educate patients on security practices.
Implement conditional sharing agreements with clear patient consents.Enhance monitoring for concerns about secondary use of personal data and increase patient awareness through accessible communication platforms.
Limit secondary use to critical cases only; ensure patient benefits are prioritized. Implement high-priority response mechanisms for concerns about secondary use of personal data with external security partnerships.
Receive transparent information about how their data is collected, stored, and used, with the option to provide explicit consent for data sharing. Emphasis should be placed on anonymization, privacy protection, and purpose limitation to ensure patient trust and compliance with data protection regulations. Have control over the extent to which their data is shared and with whom, as well as the ability to access, modify, or delete their data from the system. A feedback mechanism should be in place for patients to address concerns or provide input, and the system should be continuously monitored and improved to maintain compliance with ethical standards and data protection regulations.
Harmonizing technology & Optimizing people’s health experience